It is Like Clockwork

I have shared before that Nathan has a condition called PFAPA (which is an acronym for lots of medical words). Basicially, it is a persistent fever syndrome. He gets achy, lethargic and has nausea. He was getting the fevers every 9-14 days, but the last two have come about every 30 days. He got one yesterday literally 30 days since the last one. I still can't believe how patterned they are--I should believe it by now, but it never ceases to amaze me. A part of me so hopes that the fevers will stop and we will move past that 14 or 30 day mark fever free. But not the case so far. We know how to treat it now and can at least bring him relief. I am thankful for that.

I made this layout to document our struggles with it. When my husband saw this one he commented that it makes him sad. To see Nathan's beautiful face, his innocence and youth. Steve has said many times that he would take on the sickness for Nathan. I would do the same. The journaling reads: You have a condition called PFAPA or Persistent Fever Syndrome. About every 14 days, you are sick. You will outgrow it. But it effects us, you. One day, we will be able to see the positives. How flexible you have become, how Dad and I have learned to work together. It is making us stronger. Patience, prayer & time. We will overcome it, together...

I believe it we will overcome it and will be stronger, but I would still love for this to be the last one...