Saturday, February 21, 2009

It is Like Clockwork

I have shared before that Nathan has a condition called PFAPA (which is an acronym for lots of medical words). Basicially, it is a persistent fever syndrome. He gets achy, lethargic and has nausea. He was getting the fevers every 9-14 days, but the last two have come about every 30 days. He got one yesterday literally 30 days since the last one. I still can't believe how patterned they are--I should believe it by now, but it never ceases to amaze me. A part of me so hopes that the fevers will stop and we will move past that 14 or 30 day mark fever free. But not the case so far. We know how to treat it now and can at least bring him relief. I am thankful for that.

I made this layout to document our struggles with it. When my husband saw this one he commented that it makes him sad. To see Nathan's beautiful face, his innocence and youth. Steve has said many times that he would take on the sickness for Nathan. I would do the same. The journaling reads: You have a condition called PFAPA or Persistent Fever Syndrome. About every 14 days, you are sick. You will outgrow it. But it effects us, you. One day, we will be able to see the positives. How flexible you have become, how Dad and I have learned to work together. It is making us stronger. Patience, prayer & time. We will overcome it, together...

I believe it we will overcome it and will be stronger, but I would still love for this to be the last one...


  1. Oh my, I've never heard of that Stacey! So sorry your little guy has to go through that, but it sounds like you have adjusted. LOVE this layout, it's just perfect!

  2. What a beautiful layout and a great way to document it.

    I'm sorry that he has to go through this and hope he will eventually outgrow it.

  3. what a meaningful layout--- I'm sure he will really appreciating seeing that one day!

  4. Oh gosh, stacey, that's so rough :-( I've never heard of that either, and i'm sorry your little guy has to struggle with that. Love the LO, though, and I think it's great to document the bad things, too! Also love the gorgeous LO in the post below with the KI sheers- I need to get my hands on those!

  5. This is a beautiful page Stacey. I've never heard of the condition either. How hard and draining that must be on all of you. (((hugs)))


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